Faithful Readers, I have a new idea I’d like to run by you.
After my last two posts, I don’t doubt that you are saying, Oh no, what kind of awful plan has she got now???
It’s not what you might be thinking.
I’m thinking I might get an RV and have it a bit modified for people with upper body disabilities…and go RV’ing around the country till I can’t do it any more.
I hate where I’m living. The RV I would get will have a full bathroom, which I don’t have now. It will have a full kitchen, which I don’t have now. It will limit the amount of JUNK I can collect….I am a professional junk collector.
I want to go exploring in my favorite part of America: the Wild and beautiful West. Maybe even find some way to volunteer at the National Parks, so I can camp there for free! I can’t do trail duty any more, but I can answer phones…or “woman” the Information Desk and give out maps…I’m sure the National Park Service has volunteer gigs for disabled people!
Like I have said before, I don’t intend to let this disease get me like it got my dad…but neither do I want to just sit around this dratted uncomfortable place until I freeze in mid-air like Dad did!
If I can find a way to make the rest of my life fun and fulfilling, that will mean a lot. Yes, Dad’s life was amazing right up to the point where his disease took over his life and he couldn’t do his magical art anymore. Then he spent five miserable years dependent on others. That’s when my life will go bye-bye. Not doing that, if I can help it at all.
Dad lost his life–although his body stayed painfully alive–when he was 85. My disease is progressing about 20 years earlier than his. And my disease is in my neck, which his never was…and thus it threatens my whole body with the spectre of quadriplegia. Not on the menu, if I can possibly help it.
When I think about cancer, I don’t think “chemo and radiation can help you live another (fill in the blank) months, years. I am not interested in living with poisons and burnings. Yes, I know that many of you are Cancer Survivors, and I totally applaud your courage.
However, I do not have the drive to live that others may have. I welcome death. I’ve had some amazing victories in my life, for which I am intensely grateful. But now I am faced with two terminal diseases (Bipolar and Spinal Stenosis), and my chief aim is to enjoy the life that is left to me, and to go peacefully when the time comes….please God, let me know when the time is right so I don’t miss it and end up in a nursing home for years.
So. I told you I wasn’t going to write about THAT, but it’s on my mind, so there you have it.
An RV would provide me with comfort, mobility, and FUN! I’m getting revved about it.
What do y’all think about that idea?